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Page • 08.10.2019 • 100% Relevance

Pushing the limit – Ingo Sparenberg on extreme sports with cystic fibrosis

his life. PARI blog: Ingo, despite having cystic fibrosis you have completed a triathlon, several half marathons, a marathon, an ultramarathon and the Brocken marathon. Why do you...
Page • 13.07.2022 • 78% Relevance

Using a nasal douche: How to irrigate your nose

water and broken down secretions from your nose. Switch to the other nostril once you have used about half of the rinsing solution. Turn the arrow on the nasal joining piece to the...
Page • 18.11.2020 • 75% Relevance

World COPD Day: Eberhard Jordan sets himself a personal challenge to climb 48 storeys

On Mondays, Wednesdays, Thursdays and Saturdays I train at home. My programme takes about two and a half hours and involves endurance, strength and respiratory training. On...
Page • 10.11.2020 • 70% Relevance

Using nebulisers for children with colds and sniffles – a mother of three shares her experience

BOY six-and-a-half years ago for our oldest daughter’s cough. The device works just as well today as on the first day although it has gotten a ton of use every cold season for...
Page • 04.09.2024 • 67% Relevance

Inhalation therapy with cystic fibrosis despite taking CFTR modulators? Cystic fibrosis patients address the question

the CFTR modulator therapy, my therapy times have halved from three hours a day down to one and a half hours. Inhalation therapy with antibiotics is no longer part of my long-term...
Page • 21.05.2019 • 65% Relevance

Exercising with primary ciliary dyskinesia – an amateur runner reports

primary ciliary dyskinesia, and I have to blow it. But I know that I can run five kilometres in under half an hour despite my PCD. I am especially pleased that I am in better shape...
Page • 29.11.2023 • 61% Relevance

Living with tracheostomy: Interview with a patient

develop after the operation. After the operation I did inhalation therapy with a device for about half a year. Then I was able to stop the inhalation therapy because I have learnt...
Page • 15.09.2020 • 57% Relevance

Importance of respiratory care from the perspective of a physiotherapist using the example of top-class sport

Professional athletes are especially susceptible. Their immune system is stretched to the limit. More than half of the athletes who visited a doctor during the 2014 Olympic Games...
Page • 07.07.2020 • 55% Relevance

Post-transplantation experiences: My life with a donor lung

had the feeling of having a constricted ribcage when inhaling for at least another one to one-and-a-half hears. I think it is a safe assumption that exercise helped me overcome...
Page • 22.10.2019 • 54% Relevance

Feeling worthy of love despite an illness – an interview about cystic fibrosis and relationships

Over the long term though this request meant that I, a sick person, was regularly getting one-and-a-half to two hours less sleep a night than she, a healthy person, was. But as a...
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