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Page • 05.11.2019 • 59% Relevance

No greater joy than finding someone you love, regardless if healthy or sick

his disease. At that time he was still hiding his disease. He was not as open about then as he is today. The first time that I heard Markus talk about his cystic fibrosis was at a...
Page • 21.05.2019 • 53% Relevance

Exercising with primary ciliary dyskinesia – an amateur runner reports

would not be able to do much more. My breathing would be blocked, I wouldn’t have the stamina I have today. Furthermore, I would get colds more often and wouldn’t be able to train...
Page • 23.06.2020 • 51% Relevance

Treatment and nebuliser therapy for COVID-19 in hospital: Interview with the Prof. Dr Kamin, Medical Director of the Hamm Lutheran Hospital

Hamm with regards to children hospitalised due to COVID-19? Prof. Dr. Wolfgang Kamin: I ran a survey today of the 30 paediatric hospitals in this area where the average...
Page • 20.03.2019 • 51% Relevance

Employee voices

the company. PARI is larger than it first seems and it offers many opportunities for engagement. Today I am a systems administrator in the IT department and I really appreciate...
Page • 20.01.2026 • 46% Relevance

Modern Slavery Statement

from a small manufacturing business into a globally recognized specialist in respiratory therapy. Today, the independent and private-owned company is headquartered in Starnberg....
Page • 17.03.2020 • 46% Relevance

Using a nebuliser in a child with asthma and bronchitis – a mother’s experience.

experience. Little Justus has asthma and chronic bronchitis. His mother, Julia, explains in the blog today how daily life is shaped by medications and inhalation. Published Tue 17....
Page • 01.04.2019 • 44% Relevance

The long path to a diagnosis in rare diseases using PCD as an example

surgeries, all the agony for nothing. Despite everything that had been done I was always sick’, she says today, summing it all up. What Christine Braune did not know then was that...
Page • 27.05.2025 • 44% Relevance

Relapsing polychondritis – interview with a patient

had to stop mid-presentation because I couldn’t catch my breath. This experience still resonates today. Another limitation is the many appointments I have at the dermatology...
Page • 14.05.2019 • 42% Relevance

My child has cystic fibrosis – How parents handle the diagnosis

social media Focus on the positive : Cystic fibrosis progresses differently in every patient and today it no longer necessarily means a child has to die an early death. The average...
Page • 22.12.2020 • 42% Relevance

Suddenly not being able to smell or taste anything – how Cordula regained her sense of taste and smell

do that at all, which meant that it also affected my husband very deeply. PARI blog: How are you today? Cordula Schweighöfer: I am much better now. I completely lost my sense of...
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