perspective, PCD was even less well known then than it is now. It was therefore difficult to even come up with the idea that I might have PCD’. The doctors fumbled about in the...

(PCD), must use a nebuliser device every day. This requires discipline and is not something that comes easily for everyone. The PARI blog spoke with people who have these diseases,...

out? Carola Landerer: It is always hard to motivate other people to work out, because they need to come to that conclusion themselves. Still, I’d like to share my story. I never...

+ Children Testimonials When parents learn that their child has cystic fibrosis (CF), it usually comes as a shock. Everything points to a short life expectancy, extensive...

into the twisted side of your chest. Feel how your chest moves, how your ribs move apart and then come together again. Stay in this position for at least 30 seconds. When you have...

your thighs. Breathe in deeply through your nose and raise your ribcage. The strength to do this comes from the muscles between your shoulder blades. Imagine a string attached to...

at about chest level. Your arms should not bear much weight. The entire time your strength should come from your back muscles. Hold this position for 6 to 10 deep breaths (through...

bottom of the ribcage and try to pull it out. Pinch the tissue so it is as flat as possible, not coming to a point. Pull the tissue over the ball of your thumb. Hold the tissue...

a killjoy when I need to rest and have to withdraw. This has evened out now. I don’t force her to come back home with me when we are out of the house when I need a break and or...

admire anything about your husband? Barbara Hänni : Markus has admirable sense of discipline when it comes to his inhalation therapy. He does it consistently every day, twice a...