I’ve been like that since I was a child. I am used to the daily nebuliser and respiratory therapy. Both are a part of my day’, explains Hänni. For Sven Weiboldt, it was rather...

time and conversations to accept your child’s cystic fibrosis ‘We needed around 6 months to process both our children’s diagnosis’, recalls Nadine. ‘The CF clinic provided a...

this exercise: Lie flat on your back. Turn so you are lying on one side and bend your knees. Stretch both of your arms out in front of you and up with one on top of the other. Your...

version of this exercise. For the easier “mini” version place one leg on top of the other and bend both knees instead of having the bottom leg straight. The “screw” exercise will...

your back, straightened out. Your palms should be down toward the floor. Cross your thumbs and put both hands under your bum. Slide your hands as far down as possible toward your...

s A trip to Australia would no doubt be special for anyone, but for me, the trip “Down Under” was both a dream journey and a potential risk, because I have cystic fibrosis (CF). It...

s A trip to Australia would no doubt be special for anyone, but for me, the trip “Down Under” was both a dream journey and a potential risk, because I have cystic fibrosis (CF). It...

that I realised I had a real chance. After 7 hours I dragged, ran, slid, limped over the finish line. Both for me, but also for everyone who cheered me on those last metres before...

means it is a potential source of conflict. I can’t do as much as my wife because of my disease. We both had to learn how to cope with this. I have often felt bad and attacked when...

PARI blog: These are difficult conditions. Do you function differently than other couples who are both healthy? Barbara Hänni: In our family unit I am the rock everyone depends on....