My child has cystic fibrosis – How parents handle the diagnosis
When a child is diagnosed with cystic fibrosis, parents usually have a hard time. Three families share their experiences with getting the diagnosis on the PARI blog.
Working out with cystic fibrosis – Interview with strength training blogger Carola Landerer. Part 2
Carola Landerer has cystic fibrosis. In this interview, the 24-year-old describes how she started working out and what respiratory therapy means for her. Part 2
Working out with cystic fibrosis – Interview with strength training blogger Carola Landerer. Part 1
Carola Landerer has cystic fibrosis. In this interview, the 24-year-old describes how she started working out and what respiratory therapy means for her. Part 1
The nebuliser awaits every day
Daily nebuliser therapy is routine for people with cystic fibrosis or primary ciliary disease. Clinicians and patients report on treatment compliance.
Shortness of breath and panic attacks – exercises and advice from a physiotherapist
Physiotherapist Marlies Ziegler demonstrates helpful exercises for acute respiratory distress and panic attacks: positions that make breathing easier, pursed lip breathing, contact breathing.
The articles found on the PARI Blog are written by the PARI Blog editorial team. The editorial team consists of PARI employees as well as external guest authors and freelance editors, some of them suffering from severe respiratory diseases themselves.