Exercising with primary ciliary dyskinesia – an amateur runner reports
Christine Braune has primary ciliary dyskinesia (PCD). In an interview she talks about why running is so important to her despite having this lung disease.
My child has cystic fibrosis – How parents handle the diagnosis
When a child is diagnosed with cystic fibrosis, parents usually have a hard time. Three families share their experiences with getting the diagnosis on the PARI blog.
Working out with cystic fibrosis – Interview with strength training blogger Carola Landerer. Part 2
Carola Landerer has cystic fibrosis. In this interview, the 24-year-old describes how she started working out and what respiratory therapy means for her. Part 2
Working out with cystic fibrosis – Interview with strength training blogger Carola Landerer. Part 1
Carola Landerer has cystic fibrosis. In this interview, the 24-year-old describes how she started working out and what respiratory therapy means for her. Part 1
The nebuliser awaits every day
Daily nebuliser therapy is routine for people with cystic fibrosis or primary ciliary disease. Clinicians and patients report on treatment compliance.
The articles found on the PARI Blog are written by the PARI Blog editorial team. The editorial team consists of PARI employees as well as external guest authors and freelance editors, some of them suffering from severe respiratory diseases themselves.