Living with cystic fibrosis: “Not normal, but extraordina
Miriam thinks her life with cystic fibrosis is extraordinary and in some ways more positive than a normal life. In our interview the 29-year-old explains why.
Miriam thinks her life with cystic fibrosis is extraordinary and in some ways more positive than a normal life. In our interview the 29-year-old explains why.
Barbara H. talks about her relationship with her husband, Markus, who has cystic fibrosis. And about why the love one feels for someone counts more than their physical integrity.
Markus has cystic fibrosis, is married and is the father of two children. In this interview he explains how his illness affects his marriage and fatherhood.
Ingo Sparenberg, who has cystic fibrosis, does extreme sports. In an interview he talks about his motivation and why sports saved his life.
A trip to Australia with a camper van entails risks for a cystic fibrosis patient. Even so, the PARI blog author, Alex, risked the trip and describes the challenges, the tour and her unforgettable experiences. Part 2
The articles found on the PARI Blog are written by the PARI Blog editorial team. The editorial team consists of PARI employees as well as external guest authors and freelance editors, some of them suffering from severe respiratory diseases themselves.