The nebuliser awaits every day
Daily nebuliser therapy is routine for people with cystic fibrosis or primary ciliary disease. Clinicians and patients report on treatment compliance.
Shortness of breath and panic attacks – exercises and advice from a physiotherapist
Physiotherapist Marlies Ziegler demonstrates helpful exercises for acute respiratory distress and panic attacks: positions that make breathing easier, pursed lip breathing, contact breathing.
The long path to a diagnosis in rare diseases using PCD as an example
People who have rare diseases often are not diagnosed for a long time and after much suffering. Personal accounts of two people with the genetic disorder PCD.
The articles found on the PARI Blog are written by the PARI Blog editorial team. The editorial team consists of PARI employees as well as external guest authors and freelance editors, some of them suffering from severe respiratory diseases themselves.